{February 5, 2016}   Still No Doctor

They told me two weeks ago I needed to get in and get this lymph nod and whatever is on it taken out. They said to get in to see a doctor right away and get a referral. They even said if I got a referral to this doctor she would see me and do the surgery right a way. Well I went that day even after not sleeping hardly and got the referral. Then I call the office to see when I could go in and they tell me no they can’t see me. I called and called around looking for a doctor to see me that went to one of the hospitals I wanted to go to and couldn’t find one. The only one I found would not see me in office only if they admit me and the insurance will not let them do that. I finally found one that will see me it took them a while to get a new referral because they can’t use the one I have they have to have one sent right from the doctor. Then they asked if I had xrays. I told her I had the CT and blood work in the hospital. She had to send to get them from the doctors office. They called told me the soonest they could get me in was the 18th. Great whats 2 to 4 more weeks of pain. Then they call me back yesterday and tell me the doctor looked at the test it’s self not just the report and feels that I need to go to an ENT not there so they are not going to see me. They said to call my doctor back and have them find me and ENT or find one and then call and have them send yet another referral and my test to them and wait for them to get in and decide what to do.

I was out with my grandma while she was getting test and things yesterday and did not get home in time to call around. I did get a few minutes to call one and they will  not see me either. I just tried to call the one that my oldest seen and they are not open today past 12. So now I have to wait until Monday and call. I hope they take it I am not crazy about him he don’t have the best bedside manner but he knows his stuff and is really good. He is just very straight forward blunt and do the point with things. I like that but at the same time with a doctor I don’t know there is just something about it.

This thing feels like it is swollen bigger to me. My mom says my neck looks swollen all the way around. but there is only the place on the right side still. I think the other is the thyroid is enlarged more, I think it was before and went down because I was swollen a lot the first time I went in and they didn’t listen to me. But they are more worried about the lymph nod right now because they said the thyroid wouldn’t make the lymph nod do this and they feel it is bothering the thyroid not the other way around. I have the paperwork I am supposed to go get the thyroid tested again in a month or two. But they thought I would have this out and be healed up by then. It looks like I will just be getting this taken care of.

I just wish the pain would go away. My mom telling me well the pain is going to come back if you don’t take the meds like they told you. I keep telling her the meds did not make the pain go away I walk around in pain everyday from it. Some days are worse than others and a lot of days by the time night rolls around I am in bad pain again. She even went so far as to say I was making it up and  not in as much pain as I claimed to be the other week. I think I haven’t been in as much pain as I was to start with because some of the swelling around it has went down. But now that it is starting to swell more it is starting to hurt more and worse. Even the therapist said yesterday when I took my son in that you can still see it but I look a lot better than I did the week before that I looked really ruff the week before. She laughed she said not saying anything but that you could really tell you were miserable and it was bad.

I still hate the idea of being cut open and having this thing cut out but. the pain trumps it all.

{January 22, 2016}   Surgery Next Week, Why Not

I ended up in the er yet again this week over whatever is going on in my face and neck on the right side. I have tried to follow-up with doctors or urgent care and no one will see me or help me. They tell me the end of March or just don’t call me back at all. I was in a lot of pain again Wednesday and the place under my jaw on my neck has not went down any after being on everything for a week. I know this is not an infection there is more to it and something going on. They just don’t listen. I finally got father of the year to come over here about 9 or 10 and took myself over there. I started to go somewhere else but really didn’t want to drive all that far and don’t like the one that is closest so the place I use is already a drive. It probably about ten miles so not really a huge drive but when you don’t feel good and your pain and it’s late 2 miles feels like 20.

I got there and they took me back in just a bit. They didn’t look that busy from the waiting area but they had a lot of people in rooms but it was quite and not a lot going on. The triage woman did what she needed to do once she got me to a room and then the nurse came in and talk to me. They were all different from when I was there the last two times. Then a physicians assistant came in to talk to me said she would be taking care of me and wanted to know what all was going on. I explained to her what was going on and told her I been there three times in three weeks and that I couldn’t get in to see anyone and this is really bad. She started saying so your throat hurts and you have pain…

I stopped her and said no this is the problem they are not listening to me my throat does not hurt I’m not congested. I told her this is outside of my mouth, in my neck, up the side of my face around my ear, all around my eye and above it and it is only on the right side not on the left side at all. That it is in my cheek it is in the skin or under the skin but not in my throat inside my mouth. That the only thing in my mouth that bothers me is my tongue hurts sometimes or the rough of my mouth. that even that isn’t like when you have a sore throat it’s like bruised. She looked in my mouth and then pushed around on my teeth. I didn’t even flinch. I told her I know my teeth are not good and need to come out but that I know this is not from my teeth, I have had problems in my teeth and this is not the same they don’t even hurt. She said a virus wouldn’t go away with the meds it would take it a little while. I said but how long? She said weeks. I said how many? She said if that is what it is then it should go down in about two weeks. I said this has been this way for over three. I said I come in here and they act like I am just here because my throat hurts and I can’t take the pain or something and that isn’t how it is or what is wrong at all. I said I don’t come in here because I have a cold or sore throat if it was just a sore throat I would be at home waiting it out and going about my day as normal. I said I don’t run in here because I stubbed my toe or something. I said if you look at anytime before the last three weeks that I have been here and it isn’t that often you will see in your records that when I have come in, in the past it isn’t for something small you all find two or three things that are pretty significant things wrong. When I told her that and this has been weeks she said it normally goes down in two weeks unless there is some underlying something going on. I think we need to look into this further and do some testing. She said she was going to go run it by the doctor and see what she wanted to do.

In a bit the nurse came back in and said they needed me to take everything from the waste up off and put a gown on. He said they want to do a CT scan of the head and that he needed to start an iv and get blood they ordered a big blood work up. I got the gown on and he came back in to do the iv and blood. I told him they get it out of the hand. He said but they want to do contrast I need to get it in the arm. I said ok and he looked and looked at my left arm. He then went to the right and looked all over. He said what if I start it in your hand to get the blood work going and I will check with them in CT to see if they can use the one in the hand and do the contrast or if we have to try to go higher up? I said that’s fine and told him that the last time they did contrast they did it with one in the hand because they couldn’t get the arm then either. But that I also had to drink a cup of contrast stuff and they put some in the iv. He said I didn’t have to drink the cup of stuff just the iv. I said oh that may, make a difference. While we were talking someone came by with someone from the room by me and he stopped her and called her in. She came around the curtain and he told her he couldn’t find a spot in the arm but my hand was good and if they could use that for the contrast? She asked what they were looking at and things and if it was something and he said no he thought it was just something else. She said yes the one in the hand would be fine.

He got it right in and got all the blood they wanted, I laid there forever waiting to go for the test. About and hour or two later he came and said they were ready for me in CT and took me over. I got in there she said my blood work has come back and they could do the test. I guess they were looking for something in it before they did the test. She hooked the iv up and did the test and took me back to my room. I asked the nurse how my blood work looked when he came in and he said it looked really good what all of it he saw.

Finally after another few hours the doctor came in and talk to me, she said the one who talk to me when I got there had went home. She said that they did the test and that it shows the lymph nod is very in enlarged. The way she talked it is larger than it should be even if I was just sick and fighting some infection. She said she thinks it is pressing on a nerve going up through my face and that is why I am in so much pain. She said my thyroid also looked enlarged and that I needed to follow-up and get test on it. But she said the lymph nod needs to come out and be biopsied right away. They are worried how big it was and how long it has been this way. I told them I had been sick since the week before Christmas and it was that way then but I thought it would just go away but after I got over being sick it hadn’t and then started causing me pain and things and that is when I came in the first time so it has been this way a month not just three weeks I been coming there. She said they seen that.

They wanted to keep me that night and do it the next day and get it out and tested. She had already called the surgeon and talk to her about doing it before she came in to talk to me at like 3 am. She said they told her that my insurance would not pay for it if they kept me and done it. They said I needed to go to my doctor and get sent to the surgeon and it had to be done as an out-patient or in the office. I think she said out-patient. They gave me information for somewhere I could go and get seen and get the paperwork to go to the surgeon. She told me to get up and get a hold of every one in the morning and get in to see them and get the paperwork to see the surgeon and call her. I got into see the doctor yesterday afternoon by the time I got out it was too late to get with the surgeon. I called them today and waiting on them to call me back. I told them they said it was critical that I follow-up with her in 2 to 3 days and that I have all the paperwork. She said they had to get information from the hospital and would call me back in a few minutes. I am figuring they will get my in right away sometime next week. The doctor at the er said when she talk to the surgeon she said to get all my paperwork and get right in to see her and they would set this up to be done right away. I will probably have to go in for an office visit next week then have it set up unless she will just look over all the test and set it up from that. I am just waiting to hear back what is next.

I just want it done and over I am walking around in so much pain every day and not able to take the pain meds and things. I told my sister and a friend of ours I would cut it out myself and give it to them if I wasn’t worried about bleeding too much at this point I am in so much pain. If they said they wanted to take my right toe off and it would make the pain stop they could have it. I can’t do pain in my face and head this way. I don’t know how I am going to get through the weekend I have to go to work and work all day tomorrow 12 hours shift and again Sunday because if I don’t I am going to have no pay check. With all this going on I have had to take care of it and been in so much pain. I am hoping that it being the weekend and so slow there won’t be to many people there and I can get away with not having to have the headset on my head all day. I can hold it and put it on if I need to or they can find something else for me to do or something. I don’t know what to do but I got to work and I got to make money. I have nothing coming in but my paycheck to pay bills with. Father of the year is working but I am sure he isn’t going to offer to pay anything knowing that I have missed work and going to miss work having to have this done. I pray that the pain goes away when they take it out everything goes smooth and I can go back to work as normal the next day. I am not worried about anything else as long as the pain has stopped I can keep it bandaged until it heals and go to work. I have never in my life missed so much work at one job in all the time I have been at one.


et cetera
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