Sunday I woke up to a call saying that my dad was having a bad day and had took a turn for the worse. They said they found him down in his room again and he was a mess. They called the hospice people they came out and helped get him cleaned up and called for a hospital bed, oxygen, a table and some other things for him. They said that it had gotten worse faster than they had thought it would and that they figured it only be a week to a few days probably only a few days. I got the kids dressed and ready and took them to my friends house to stay why I went over to see what was going on.
I got there he was on the couch and they were moving stuff in his room for the bed and waiting of it to be brought. The hospice nurse was there and doing paperwork showing them how to give him meds.
I went over tried talking to him he would look around and little and shake his head and then just close his eyes. The nurse started telling them how to give him the morphine and Ativan. I wanted to know why they were giving the Ativan he didn’t seem like he needed it. They said to calm him down because his blood presure was up. He wasn’t fighting or trying to move around I didn’t like the idea but didn’t say anything. When he was in the hospital a few years ago that is what they put him on and kept him out for days. Then when they took him off and he started coming to he was really grouchy and nasty they had to give him something else to sedate him. I think the morphine would have been enough. I figured they were going to want to give him more in a little bit and I was going to tell them no. But they didn’t.
My grandpa came up to see him for a little bit. I went and got my mom and my sister they wanted to go see him because no one knew how long he was going to still know who people were or anything like that. When they said a matter of days the way he was I really figured everyone should come now and see him if they wanted too. I finally had to go over get the kids from my friends house and tell them what was going on and that grandpa wasn’t going to get better. That it was probably only going to be a few days. They just knew he had been to the hospital and wasn’t feeling good. I had apoinment with the therapest to talk to her about it on Monday and talk with them about it. But I didn’t want to wait and not give them a chance to talk to him and tell them what they wanted to tell him why he still knew who they were and things. He shake his head and stuff but he wouldn’t talk. Seemed like he had a really hard time when he would try.
They went over and went in to see him. My little guy don’t really understand any of it right now. He went said hi and told him he loved him and then went out to play. My big girl understands and she is pretty upset. She sat down beside his bed in the chair and he reach out for her hand she sat there and held his hand for a while. She told him she loved him and thank you for all he had done for her and gave her. He shook his head when she said she loved him like to say is back. My baby girl don’t have a clue really what is going on but when I was sitting by his bed she came and wanted on his lap. She sit there and just chatter a way or look at him. She singing something. I said she is singing for you daddy you hear her he look. I could tell he wanted say something but couldn’t he kind of had this half smile. She didn’t want to get down off my lap for anything she kept sticking her feet in the bars and I couldn’t figure out what she was doing. I said grandpa don’t want to smell your stinky feet she laugh. I was watching her his hand was there no one was holding it but he had it close to the rail on the bed and it was resting against it. She was trying to put her foot in his hand. She always grabs her foot and plays with it or tickles her feet and plays with them when he is over. Most the time she is sitting in the truck in her seat and he will grab them. She use to hold them up tell him stinky feet and things. She wanted him to grab her foot and play with her. She got upset when he wasn’t. I guess she seen him holding everyone else hand and things. I stuck her foot up where he could hold it he rubbed it she just smiled. She sat there for a long time just watching him and things.
I don’t know what they were all doing but everyone went out of the room there for a little bit and he was laying there with his eyes closed I gave him a hug told him how much I loved him. I told him I was sorry he was sick and that I understood why he decided to do things the way he did. That I was glade he was ok with everything and at peace with what he decided and that it was hard but I was trying to be ok with it too. I told him that we were sure going to miss him either way. He pulled a way a little and turned to look at me. He looked at me. It was odd he looked at me really funny. I asked him if he was ok he said yeah. I asked him if he wanted me to go out and let him sleep he said no. He wanted me to stay with him. At this point he was talking some but not to many words and not real loud they were low. I sat him up and I had been looking for the blanket I got him for Christmas to put over him he shook his head earlier that he wanted it when I asked him. They hunted and hunted around looking for it couldn’t find it. They kept saying he left it at my house I told them no he had not. So when he started talking some I told him I was going to put it over him but we couldn’t find it. He told me it was at his friends house. I wasn’t happy but I didn’t say anything. I feed him some soup and gave him some water he ate pretty good and drank a good amount of water. He said he wanted to sleep some more he was tired. I sat with him til he went to sleep and went out.
Everyone was getting ready to leave I was going to go and go back up the next morning and someone said something about staying so I ended up staying up there for the night to help if he needed anything and to be there in case anything happen. He got up in the night and wanted to go to the bathroom they got him in there. The next morning they made him eggs I went in to see how he was and he seemed more alert and things. They brought his eggs in and asked him if he wanted me to feed them to him he said no he wanted to feed himself. We moved the table over in front of him and let him eat he did pretty good and ate most of them. I sat in his room talked to him for a while then he wanted to get up and go outside. We sat out there for a long time he had a cigarette and things. They sent a hospice case worker and nurse out to check on him. They asked him if he had a bad fall the day before he said no. They said you didn’t fall down? He insisted he hadn’t. I said then what happen yesterday daddy? He said what do you mean? I said if you didn’t fall then what happen to you? He said well that wall and ceiling fell in on me again. That is what he has been telling me since he was able to talk again when you ask him. I said oh ok I just wondered. The hospice nurse and worker just said oh ok and looked at me. I wanted them to know how he was doing. They are setting up for a CNA and things to come out check on him 3 days a week the nurse is going to come out one day and the worker is going to come out once every few weeks.
We started talking about it I wonder if he didn’t have another seizure that is why they found him on the floor such a mess. It has been about two years they have never figured out why he had them. They did take him off the meds for them about a year ago or more. It wasn’t the first he had he had one years before that and one many years before. They did test after test and have never found out why. They told him at one point it was from drinking but he hasn’t drank in over two years. He stopped drinking when my grandpa died just before that. I’m just happy he is having much better days since and it isn’t a matter of days for him now. My brothers step daughter was set to be induced on Monday. I told them when I got there Sunday I bet he waited for her to have the baby and come home so not to be surprised or shocked. He was kind of excited about the baby coming. But then he was doing so much better that night and the next day. He is doing pretty good today too. He is a little confused about things and understanding things but he knows pretty much what is going on. I think the biggest problem is he can’t hear me on the phone since his hearing has gotten so bad. When I am in front of him he don’t seem bad at all. I guess he isn’t really confused or not understanding me he just isn’t able to really hear me on his phone to well. But his hearing has been bad for a while.
He also has been sick for a while because when they moved stuff out of his room they found where he gotten sick in bags and towels and things and not said anything to anyone and tried to hide it I guess.
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